Booklet produced by Alzheimer’s Australia, Down Syndrome Australia and the Centre for Developmental Disability Health Victoria (CDDHV) on specific ways Alzheimer's manifests in individuals with Down syndrome.
This checklist is intended to support the health of adults with Down syndrome directly or through their caregivers. We encourage this checklist to be shared with your medical professionals. Statements in blue represent recommended, periodic health screenings/assessments that should begin at a specific age.
This guide is intended to provide tools and advice to self-advocates who are interested in becoming more involved in legislative advocacy to work on policies and laws.
NDSS resource for families, professionals, direct caregivers or anyone concerned with the general welfare of an adult with Down syndrome.
Alzheimer’s Tennessee, Inc. provides family support, offers community and professional education, advocates for the needs and rights of those with Alzheimer’s disease and related dementias, as well as research for its prevention, cure, and treatment.
The Advocacy and Education Committee of The Arc Tennessee developed this booklet to help answer questions about alternatives to conservatorship and conservatorship in Tennessee.
The Conservatorship Association of Tennessee is a non-profit organization of people who are concerned about the quality of services for adults who may need assistance in decision-making. Membership is open to individuals interested in improving the lives of Tennesseans who may need conservatorship and other protective services. CAT promotes a nationally recognized standard of excellence in conservatorship and guardianship through networking, continuing education, training, and other programs and services. CAT is an affiliate of the National Guardianship Association.
Document outlining Alzheimer's disease, it's connection to Down syndrome, clinical features, diagnosis, assessments, treatment and supportive care from the Alzheimer's Association.
Dr. Brian Skotko created a new online course for caregivers who are looking to improve the brain health of their loved ones with Down syndrome. He is calling the course the Down Syndrome Brain Train and it gives practical ways to boost the brain health of people with Down syndrome.
Supported Decision Making is about helping people with disabilities make as many decisions about their own lives as possible. Conservatorship allows someone else to make decisions for you. Right now, many Tennesseans do not know there are other options for help in making decisions. The Council is working to educate Tennesseans with disabilities, their families and professionals who support them about less restrictive alternatives like supported decision making.