Health & Safety

National Task Group On Intellectual Disabilities and Dementia Practices

The NTG is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia - as well as their families and friends – are taken into account. The mission is to advocate for services and supports for people with intellectual disability who are affected by Alzheimer’s disease and dementias and for their families.

Kramer Davis Health - Nashville

A Health clinic that currently only takes BlueCare specializing in comprehensive, quality care through innovation, compassion, and integrity serving only people with Intellectual & Developmental Disabilities [IDD]. Services provided at the clinic are medical, dental, psychiatric, behavioral, neurology, PM&R, nutrition, physical therapy, occupational therapy and speech therapy.

Trauma and Individuals with Intellectual and Developmental Disabilities

Trauma is understood as experiences or situations that are emotionally painful and distressing. Trauma can overwhelm an individual’s ability to cope, leaving him or her to feel powerless. Individuals with IDD experience a variety of trauma-based responses similar to those who do not have an IDD. This guide gives information and tips to help those with IDD who have experienced trauma.

Extraordinary Visit Tip Sheet for the Down Syndrome Clinic

Parents often ask lots of questions about their very first visit to the Vanderbilt Children’s Down Syndrome Clinic. Thanks to some extraordinary parents, DSAMT has compiled this list of Q&As.

Adult Medical Care Guidelines

This checklist is intended to support the health of adults with Down syndrome directly or through their caregivers. We encourage this checklist to be shared with your medical professionals. Statements in blue represent recommended, periodic health screenings/assessments that should begin at a specific age. 

Children with Down Syndrome: Health Care Information for Families

The American Academy of Pediatrics (AAP) has developed a special guide to help parents and families of children with Down syndrome. It focuses on medical topics that affect physical health. This is easy to understand, parent-friendly information for what testing is necessary and why.

Adult Protective Services (TN)

Adult Protective Services staff investigate reports of abuse, neglect (including self-neglect) or financial exploitation of adults who are unable to protect themselves due to a physical or mental limitation. APS staff assess the need for protective services and provide services to reduce the identified risk to the adult. 

Abuse Registry

The Abuse Registry for the State of Tennessee is maintained by the Tennessee Department of Health. The Abuse Registry includes names of persons who have abused, neglected, exploited or misappropriated the property of vulnerable persons. The names on the Abuse Registry are submitted for placement by Tennessee departments and agencies which oversee the protection and welfare of vulnerable persons.  Names may also be submitted by law enforcement agencies. 

Advocate Medical Group for Adults with Down Syndrome

The Adult Down Syndrome Center is a primary and specialty healthcare clinic that has served the medical and psychosocial needs of over 6,000 teens and adults with Down syndrome since 1992. As a comprehensive medical resource they provide patients everything from holistic care and support to education and resources in a compassionate, welcoming environment. They also hold events, participate in community outreach and conduct research.

Autism Tennessee

Autism Tennessee exists to enrich the lives and experiences of individuals on the autism spectrum, their families, and their surrounding community through support, advocacy, and education.

Brian Skotko MD, MPP Workshops

Workshops for parents, siblings, physicians, and educators developed by Brian Skotko MD, MPP medical geneticist, director of the Down Syndrome Program at Massachusetts General Hospital, and sibling of an individual with Down Syndrome.

Child Protective Services (TN)

The Department of Children's Services investigates allegations of child abuse and neglect. They also administer the state’s foster-care system and work to find permanency for the children and youth who come into the care of the state. DCS has a goal to provide prevention and support services to children and families that promote safety, permanency, and well-being.

Children's Medicaid Waiver Programs

Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project, coordinated by Complex Child Magazine, is intended to simplify the process as much as possible. Our first goal was to create a full list of current Medicaid waivers for children. We then created individual state pages that provide additional information and links for each program. We hope to provide a comprehensive resource of all Medicaid waivers for children, including 1915(c) HCBS waivers, 1115 demonstration waivers, TEFRA/Katie Beckett programs, and state-based programs.

Down Syndrome Clinic at Vanderbilt Children's Hospital

The clinic provides comprehensive care and professional services to children and teens with Down syndrome. The clinic staff assists patients in finding therapeutic services and educational/behavioral support and providing a multidisciplinary approach to treatment.

Down Syndrome Clinic to You

DSC2U as a way for families to get up-to-date, personalized health and wellness information for their loved one with Down syndrome. Caregivers will be asked to identify current symptoms along with any past medical or behavioral diagnoses and any recent blood work or diagnostic testing. The responses will be analyzed by a computer, based on state-of-the-art guidelines designed by national Down syndrome experts. The caregiver will instantly receive two personalized documents: one for themselves and one to share with their primary healthcare provider. These documents contain customized suggestions that are designed to help their loved one get healthcare tailored to their own specific needs. 

Down Syndrome Mental Health Project

Information on medical, behavioral, social, and mental health issues for people with Down Syndrome, including practical how-to guidelines for improved understanding, management, and treatment planning.

Funding Assistance for Adaptive Equipment

Sometimes it can seem impossible to find funding for a piece of adaptive equipment you know will vastly enrich and enhance your child or client’s life. Includes Online funding resource guides and a list of funds and foundations set up to help with funding for disabilities.

PetScreening for Down syndrome

PetScreening supports the Down syndrome community and advocates for the adoption of foster, rescue, and shelter animals. PS4Ds is a philanthropic grant program that gives financial support to individuals with Down syndrome whose quality of life could be made better by adopting an animal. This includes obtaining an animal for the primary purpose of owning a companion animal.

Sexual Health Education for Young People with Disabilities - Research and Resources for Parents/Guardians

All young people need access to and can benefit from sexual health information. Young people with disabilities have the same right to this education as their peers, however considerations must be made in order to modify the program to allow for information to be understood and learned in a way that is meaningful to them.

Talk With Me Tennessee

A non-profit organization with a goal to purchase light tech AAC devices for families to use to provide access to communication. They act as a bridge for families to provide access to communication devices recommended by their treating speech language pathologist and serve as a resource for families to assist in obtaining the appropriate communication system for their child.

TN Yellow DOT Program

The Tennessee Yellow DOT Program is designed to provide first responders with an individual’s medical information in the event of an emergency on Tennessee’s roadways.  The information can mean the difference between life and death in the “Golden Hour” immediately following a serious incident.

TN Department of Health information on Down Syndrome

Tennessee Department of Health website with current information about Down syndrome for both families and medical providers. Information, reources, and Links are available along with advocacy groups across the state of Tennessee.

United Cerebral Palsy

UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP works to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network that has helped millions.