Health & Safety

Adult Protective Services (TN)

Adult Protective Services staff investigate reports of abuse, neglect (including self-neglect) or financial exploitation of adults who are unable to protect themselves due to a physical or mental limitation. APS staff assess the need for protective services and provide services to reduce the identified risk to the adult. 

Abuse Registry

The Abuse Registry for the State of Tennessee is maintained by the Tennessee Department of Health. The Abuse Registry includes names of persons who have abused, neglected, exploited or misappropriated the property of vulnerable persons. The names on the Abuse Registry are submitted for placement by Tennessee departments and agencies which oversee the protection and welfare of vulnerable persons.  Names may also be submitted by law enforcement agencies. 

Adult Medical Care Guidelines

This checklist is intended to support the health of adults with Down syndrome directly or through their caregivers. We encourage this checklist to be shared with your medical professionals. Statements in blue represent recommended, periodic health screenings/assessments that should begin at a specific age. 

Advocate Medical Group for Adults with Down Syndrome

The Adult Down Syndrome Center is a primary and specialty healthcare clinic that has served the medical and psychosocial needs of over 6,000 teens and adults with Down syndrome since 1992. As a comprehensive medical resource they provide patients everything from holistic care and support to education and resources in a compassionate, welcoming environment. They also hold events, participate in community outreach and conduct research.

Aging and Down Syndrome

NDSS resource for families, professionals, direct caregivers or anyone concerned with the general welfare of an adult with Down syndrome.

Autism Tennessee

Autism Tennessee exists to enrich the lives and experiences of individuals on the autism spectrum, their families, and their surrounding community through support, advocacy, and education.

Birth to 1 Month Healthcare Information

Parent friendly version of the American Academy of Pediatrics health care information for children from birth to one month.

1 Month to 1 Year Healthcare Information

Parent friendly version of the American Academy of Pediatrics health care information for children from 1 month to 1 year.

1 Year to 5 Years Healthcare Information

Parent friendly version of the American Academy of Pediatrics health care information for children from 1 year to 5 years

5 Years to 13 Years Healthcare Information

Parent friendly version of the American Academy of Pediatrics health care information for children from 5 years to 13 years.

13 Years and Older Healthcare Information

Parent friendly version of the American Academy of Pediatrics health care information for age 13 years and older

Brian Skotko MD, MPP Workshops

Workshops for parents, siblings, physicians, and educators developed by Brian Skotko MD, MPP medical geneticist, director of the Down Syndrome Program at Massachusetts General Hospital, and sibling of an individual with Down Syndrome.

Child Protective Services (TN)

The Department of Children's Services investigates allegations of child abuse and neglect. They also administer the state’s foster-care system and work to find permanency for the children and youth who come into the care of the state. DCS has a goal to provide prevention and support services to children and families that promote safety, permanency, and well-being.

Children's Medicaid Waiver Programs

Medicaid waivers for children are unfortunately quite confusing. Not only that, but it is impossible to find information about them. This project, coordinated by Complex Child Magazine, is intended to simplify the process as much as possible. Our first goal was to create a full list of current Medicaid waivers for children. We then created individual state pages that provide additional information and links for each program.  We hope to provide a comprehensive resource of all Medicaid waivers for children, including 1915(c) HCBS waivers, 1115 demonstration waivers, TEFRA/Katie Beckett programs, and state-based programs.

Down Syndrome Clinic at Vanderbilt Children's Hospital

The clinic provides comprehensive care and professional services to children and teens with Down syndrome. The clinic staff assists patients in finding therapeutic services and educational/behavioral support and providing a multidisciplinary approach to treatment. 

Down Syndrome Clinic to You

DSC2U as a way for families to get up-to-date, personalized health and wellness information for their loved one with Down syndrome. Caregivers will be asked to identify current symptoms along with any past medical or behavioral diagnoses and any recent blood work or diagnostic testing. The responses will be analyzed by a computer, based on state-of-the-art guidelines designed by national Down syndrome experts. The caregiver will instantly receive two personalized documents: one for themselves and one to share with their primary healthcare provider. These documents contain customized suggestions that are designed to help their loved one get healthcare tailored to their own specific needs. 

Down Syndrome Mental Health Project

Information on medical, behavioral, social, and mental health issues for people with Down Syndrome, including practical how-to guidelines for improved understanding, management, and treatment planning. 

Extraordinary Visit Tip Sheet for the Down Syndrome Clinic

Parents often ask lots of questions about their very first visit to the Vanderbilt Children’s Down Syndrome Clinic. Thanks to some extraordinary parents, DSAMT has compiled this list of Q&As.

Funding Assistance for Adaptive Equipment

Sometimes it can seem impossible to find funding for a piece of adaptive equipment you know will vastly enrich and enhance your child or client’s life. Includes Online funding resource guides and a list of funds and foundations set up to help with funding for disabilities.

PetScreening for Down syndrome

PetScreening supports the Down syndrome community and advocates for the adoption of foster, rescue, and shelter animals. PS4Ds is a philanthropic grant program that gives financial support to individuals with Down syndrome whose quality of life could be made better by adopting an animal. This includes obtaining an animal for the primary purpose of owning a companion animal.