National and International Organizations

The Black Down Syndrome Association is a non-profit organization dedicated to providing Black families with the resources and support they need for their loved ones with Down Syndrome. The organization works to create a culturally competent, safe space for Black families and their loved ones with Down Syndrome. They strive to create a community of support and understanding and to provide a platform for Black families to share their stories, experiences, and needs and are committed to advocating for the rights of Black persons with Down Syndrome and to ensure that they are given the same opportunities and respect as everyone else.

The Brett Boyer Foundation's mission is to raise awareness for Congenital Heart Disease (CHD) and fund research to advance treatment options. It is also their mission to spread the love and awareness that Brett filled them with for the wonderful, capable people living with Down Syndrome.

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3, while fostering the opportunity for life long connections.

Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities.

The Global Down Syndrome Foundation is dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. 

The International Down Syndrome Coalition (IDSC) is dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life. They promote the dignity and respect of individuals with DS and assist the families who love them. 

International Mosaic Down Syndrome Association (IMDSA) is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome. IMDSA provides a variety to helpful services to meet the needs of any individual interested in mosaic Down syndrome.

The mission of the LuMind Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome so they participate more successfully in school, lead more active and independent lives, and avoid the early onset of Alzheimer's Disease.

The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families. The NDSAN is also here to provide support to families who wish to adopt a child with Down syndrome. The mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.

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The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. 

The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome.