A booklet for new and expecting parents to help answer questions about Down syndrome and provide information, resources and support for your family.
A booklet for new and expecting parents to help answer questions about Down syndrome and provide information, resources and support for your family.
Tennessee Department of Health website with current information about Down syndrome for both medical providers and families. Information, reources, and Links are available along with advocacy groups across the state of Tennessee.
Read a letter from Alecia welcoming new parents to the Down syndrome community and the Down Syndrome Association of Middle Tennessee (DSAMT).
Una guía para nuevos padres y padres que esperan tener un bebé
Read a letter from Sheila Moore, parent of an adult with Down syndrome and previous Executive Director of DSAMT.
¡Felicitaciones por el nacimiento del nuevo miembro de su familia!
Breastfeeding and Down Syndrome: A Comprehensive Guide for Mothers and Medical Professionals, the new book by Julia’s Way, a 501C3 non-profit organization, includes information on everything from preparing to breastfeed, breastfeeding after heart surgery, getting to the breast after tube feedings, and much more.
If you are a new or expectant parent, you will find everything you need to know to successfully breastfeed your baby with Down syndrome, including dozens of mothers’ stories to help reassure you that babies with Down syndrome CAN breastfeed.
A book to help children understand Down syndrome and have fun at the same time.
A Pregnant Mother’s Guide to Down Syndrome by Down Syndrome Pregnancy.
The Down Syndrome Diagnosis Network provides resources and education about Down Syndrome, and connects you to other parents who have been in your shoes.
Facts and information about Down syndrome
Down Syndrome Pregnancy has a page with resources and information specifically for grandparents. There is also a Grandparents guide developed by the Down Syndrome Association of Central California which you can see here.
Coloring pages showing both male and female karyotypes (picture of chromosomes) with trisomy 21 or Down syndrome.
Book by the Hook family discussing the lessons they learned from their child with Down syndrome.
The National Center provides this clearinghouse of professionally recommended resources so that medical practitioners, expectant parents, and new parents have access to accurate, up-to-date, and balanced information about Down syndrome.
Dr. Frank H. Boehm is professor and vice chair of the Department of Obstetrics and Gynecology at Vanderbilt University Medical Center wrote a lovely article about his grandson, Seth, who happens to have Down syndrome and is the "perfect child".
The Global Down Syndrome Foundation and the National Down Syndrome Congress have teamed up to publish the second edition of the groundbreaking Prenatal Testing Pamphlet for Down syndrome, available in English, Spanish and Icelandic. The second edition, created from the first national survey of pregnant women and medical professionals, is easily accessible electronically, or in print at no cost.
Do you have a family member or friend who has just received a diagnosis of Down syndrome for their child? You may not be aware that what you say and do, at this critical time, even when meant with the best intentions, could be hurtful. Here are a few "Dos" and "Don'ts" that parents of children with Down syndrome suggest that we share.
All children benefit from the opportunity to grow up in a loving family, but not all birth families feel they are able to meet the needs of a child born with Down syndrome. The National Down Syndrome Adoption Network can help these families with an adoption plan and assist families who are looking to adopt a child with Down syndrome.
Disability Day on the Hill, which will be Feb. 8, 2017, is an important day for families to share their personal stories with state representatives and senators to help them understand how the decisions they make on legislative issues affect individuals with Down syndrome and their families.
I can’t wait for Disability Day on the Hill in Nashville Feb. 8 and in Washington, DC on March 22. I can’t wait to see my legislators and talk about what we need in the community. I love being there with other self-advocates who want to talk about the same things.
Spread the Word to End the Word is not a political correctness campaign. It is not about censorship. It is all about RESPECT.
My name is Paul Daugherty. My blessing, one of many, is my daughter Jillian Daugherty Mavriplis. She’s 27 and has achieved a lot: High school graduation, four years of college, full-time employment, complete independence and marriage to the love of her life, Ryan. Oh, she has Down syndrome. Almost forgot that.
If your child or family member has Down syndrome, he or she may be eligible for financial assistance to help pay for any medical care, housing costs, caretakers, and any other daily living needs. The Social Security Administration (SSA) offers benefits for people who are unable to work or participate in typical childhood activities due to a serious disability. Down syndrome almost always medically qualifies for Social Security benefits, but financial eligibility may be a little more challenging.