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Publications

DSAMT Videos

Link to DSAMT YouTube Channel which includes a variety of videos for education, events, appreciation, and entertainment.

Advocacy Tips for Advocacy Training Boot Camp 2021

National Down Syndrome Congress video where fellow advocates share their best pieces of advice for legislative advocacy.

Barton Lab Dignity and Disability

In the Barton Lab Dignity and Disability section you will find resources related to treating children with disabilities with the respect and dignity they deserve. The series provides recommendations for practitioners who work with young children with disabilities to support these children in a way that will set them up to thrive.

Books

DSAMT has compiled a list of published books that provide information, support acceptance and inclusion, and give personal experiences from families. Many of the informational books can be requested from the DSAMT lending library by contacting Tanya Chavez Tanya@somethingextra.org.

 

Down Syndrome and Alzheimer's Disease

Booklet produced by Alzheimer’s Australia, Down Syndrome Australia and the Centre for Developmental Disability Health Victoria (CDDHV) on specific ways Alzheimer's manifests in individuals with Down syndrome.

Down Syndrome Fact Sheet

Facts and information about Down syndrome

Down Syndrome Learning Styles - Webinar

Once you understand the common learning types of individuals with Down syndrome, you can more easily help meet the needs of your child with DS and help them achieve their potential. We will discuss the more common strengths & weaknesses of those with DS, their learning styles or profiles and strategies for success. Presented by Alecia Talbott, Executive Director of DSAMT, parent of a child with DS

Exceptional Parent Magazine

Exceptional Parent provides articles on a variety of special needs topics.

Facilitating Social Inclusion Webinar

DSAMT hosted self-advocate Rachael Mast and her mom, Jawanda Mast, Manager of Grassroots Advocacy at the National Down Syndrome Society (NDSS) for a workshop at the Vanderbilt Kennedy Center in 2016.

Global Webinar Series

Multiple Webinars as presented by the Global Down Syndrome Foundation.

How to Support Individuals with Down syndrome

One page document by DSAMT with helpful information for your interactions with individuals who happen to have Down syndrome.

Just Like You

Candid, heartwarming film featuring kids with Down Syndrome sharing their experiences, with a goal of opening hearts and perspectives.

Kindred Stories Of Disability Special Supporting Families Edition: Connections to Communities

Stories that demonstrate how individuals with disabilities and their families find support in their communities and how they address the barriers to full community inclusion and meaningful engagement that many people still face on a daily basis.

Legislative Terminology

Reference sheet from Disability Rights TN of frequently used Legislative terminology.

NDSS Inclusion Brochure

Information on educating students with Down syndrome with their non-disabled peers.

Overview of ABLE Accounts

Video presented by The Arc's Center for Future Planning. ABLE accounts are one way for people with disabilities to save money and not lose their public benefits. Learn more about them in this video. You can access the video slides here: https://bit.ly/3BmdvAC

Overview of Special Needs Trusts

Video presented by The Arc's Center for Future Planning. People with disabilities and families can use special needs trusts to save for the future. Watch this video to learn more about how they work. You can access the video slides here: https://bit.ly/3Fskn1S

Parenting Special Needs Online Magazine

Parenting Special Needs Online Magazine has created a world that provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gifts

Preferred Language Guide

Use this language when referring to Down syndrome and people who have Down syndrome.

Shattering Stereotypes Video

Video: Stand Up for Downs – Help Us Shatter Stereotypes

Stop Putting People in Boxes Video

Video: What happens when we stop putting people in boxes?


Detecting and Dealing with Symptoms of Alzheimer's Dementia in People with Down Syndrome

In April of 2018 my daughter, Sharmane and I experienced the privilege of attending the National Down Syndrome Society’s inspirational and educational First Annual Down Syndrome Adult Summit.  

With Sharmane getting older, forty-four at the time of the conference and dementia prevalent in people with Down syndrome, we mainly attended lectures related to dementia and Alzheimer’s. A few speakers provided insight into the early symptoms of Alzheimer’s, which are different for people with Down syndrome as explained below. Others described best practices for dealing with those experiencing dementia, and one lecture offered suggestions for preserving memories.   

This essay is intended to help the parents, family, friends, and caregivers of people with Down syndrome to recognize and navigate the turbulent world of dementia if you must enter that realm.  

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My Journey to DSAMT

I wanted to write a blog post and share a little about myself and my family with everyone.  You may be wondering….what brought me to DSAMT given that I don’t have a child with Down syndrome?  Well, the answer is a little long...

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The "Can" Revolution

The consequences of making assumptions about our kids can be real and negatively impactful.  This post explores the need to shift the paradigm from one of what our kids can't do to what they CAN do.

 

 

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