DSAMT is often made aware of research opportunities that are looking for participants in Middle TN. This list will give you local opportunities to make a difference in the lives of all of those with Down syndrome.
DSAMT is often made aware of research opportunities that are looking for participants in Middle TN. This list will give you local opportunities to make a difference in the lives of all of those with Down syndrome.
A Research Report for Families based on findings from Treating Speech Comprehensibility in Students with Down Syndrome Study.
Focused on research, Medical care, Education and Advocacy.
The mission of the LuMind Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome so they participate more successfully in school, lead more active and independent lives, and avoid the early onset of Alzheimer's Disease.
Training and resources for clinicians, students, researchers, and educators.
The Baylor Center for Disability and Flourishing at Baylor University is inviting your involvement in a first-of-its-kind longitudinal research study exploring how parents experience and understand patience while raising children with developmental disabilities (ages 11-17). What does patience look like in this unique season? How might it help and what makes it so hard? They want to learn how to better support parents as their children with intellectual disabilities or autism transition toward adulthood. This study involves completing an online survey each spring over four years and you will be paid for your time.
The ABATE Study is testing a vaccine for Alzheimer’s disease in people with Down syndrome. The study is being conducted in collaboration with the Alzheimer's Clinical Trials Consortium – Down Syndrome - ACTC-DS.
People with Down syndrome often get Alzheimer’s disease (a type of dementia) when they get older. Dementia is a disease that causes memory loss and other thinking problems. Dementia due to Alzheimer’s occurs when a protein called amyloid builds up in the brain. About 80 people with Down syndrome will take part in the ABATE Study. The study is testing an investigational vaccine for Alzheimer’s disease in people with Down syndrome. We want to see:
• If the vaccine is safe
• How the vaccine works inside the body
• If it helps get rid of amyloid buildups
• If it slows down memory loss and thinking problems
What is a clinical research study? Clinical studies test new drugs that are not available to be prescribed yet. They test to see if the drugs are safe and effective and don’t have too many side effects. Right now, there is no treatment available for Alzheimer’s disease and dementia in people with Down syndrome. Your participation in this study could help us find a treatment. To learn more, visit Abate-study.com or contact the study team: Blake Wilson 615-936-4997 blake.wilson@vumc.org
Disability Day on the Hill, which will be Feb. 8, 2017, is an important day for families to share their personal stories with state representatives and senators to help them understand how the decisions they make on legislative issues affect individuals with Down syndrome and their families.
I can’t wait for Disability Day on the Hill in Nashville Feb. 8 and in Washington, DC on March 22. I can’t wait to see my legislators and talk about what we need in the community. I love being there with other self-advocates who want to talk about the same things.
Spread the Word to End the Word is not a political correctness campaign. It is not about censorship. It is all about RESPECT.
My name is Paul Daugherty. My blessing, one of many, is my daughter Jillian Daugherty Mavriplis. She’s 27 and has achieved a lot: High school graduation, four years of college, full-time employment, complete independence and marriage to the love of her life, Ryan. Oh, she has Down syndrome. Almost forgot that.
If your child or family member has Down syndrome, he or she may be eligible for financial assistance to help pay for any medical care, housing costs, caretakers, and any other daily living needs. The Social Security Administration (SSA) offers benefits for people who are unable to work or participate in typical childhood activities due to a serious disability. Down syndrome almost always medically qualifies for Social Security benefits, but financial eligibility may be a little more challenging.