DSAMT is often made aware of research opportunities that are looking for participants in Middle TN. This list will give you local opportunities to make a difference in the lives of all of those with Down syndrome.
DSAMT is often made aware of research opportunities that are looking for participants in Middle TN. This list will give you local opportunities to make a difference in the lives of all of those with Down syndrome.
A Research Report for Families based on findings from Treating Speech Comprehensibility in Students with Down Syndrome Study.
Focused on research, Medical care, Education and Advocacy.
The mission of the LuMind Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome so they participate more successfully in school, lead more active and independent lives, and avoid the early onset of Alzheimer's Disease.
Training and resources for clinicians, students, researchers, and educators.
The Baylor Center for Disability and Flourishing at Baylor University is inviting your involvement in a first-of-its-kind longitudinal research study exploring how parents experience and understand patience while raising children with developmental disabilities (ages 11-17). What does patience look like in this unique season? How might it help and what makes it so hard? They want to learn how to better support parents as their children with intellectual disabilities or autism transition toward adulthood. This study involves completing an online survey each spring over four years and you will be paid for your time.
The ABATE Study is testing a vaccine for Alzheimer’s disease in people with Down syndrome. The study is being conducted in collaboration with the Alzheimer's Clinical Trials Consortium – Down Syndrome - ACTC-DS.
People with Down syndrome often get Alzheimer’s disease (a type of dementia) when they get older. Dementia is a disease that causes memory loss and other thinking problems. Dementia due to Alzheimer’s occurs when a protein called amyloid builds up in the brain. About 80 people with Down syndrome will take part in the ABATE Study. The study is testing an investigational vaccine for Alzheimer’s disease in people with Down syndrome. We want to see:
• If the vaccine is safe
• How the vaccine works inside the body
• If it helps get rid of amyloid buildups
• If it slows down memory loss and thinking problems
What is a clinical research study? Clinical studies test new drugs that are not available to be prescribed yet. They test to see if the drugs are safe and effective and don’t have too many side effects. Right now, there is no treatment available for Alzheimer’s disease and dementia in people with Down syndrome. Your participation in this study could help us find a treatment. To learn more, visit Abate-study.com or contact the study team: Blake Wilson 615-936-4997 blake.wilson@vumc.org
In April of 2018 my daughter, Sharmane and I experienced the privilege of attending the National Down Syndrome Society’s inspirational and educational First Annual Down Syndrome Adult Summit.
With Sharmane getting older, forty-four at the time of the conference and dementia prevalent in people with Down syndrome, we mainly attended lectures related to dementia and Alzheimer’s. A few speakers provided insight into the early symptoms of Alzheimer’s, which are different for people with Down syndrome as explained below. Others described best practices for dealing with those experiencing dementia, and one lecture offered suggestions for preserving memories.
This essay is intended to help the parents, family, friends, and caregivers of people with Down syndrome to recognize and navigate the turbulent world of dementia if you must enter that realm.
I wanted to write a blog post and share a little about myself and my family with everyone. You may be wondering….what brought me to DSAMT given that I don’t have a child with Down syndrome? Well, the answer is a little long...
The consequences of making assumptions about our kids can be real and negatively impactful. This post explores the need to shift the paradigm from one of what our kids can't do to what they CAN do.