Article from Scientific American that discusses if a diagnosis is not delivered with care, it can form an intense “flashbulb memory” that endures for years after the fact. The study showed that the intensity of these memories and the emotions associated with them depend on the doctor’s delivery, which either softens the impact or prolongs the pain.
The first-in-kind Global Guideline for medical care of adults with Down syndrome was peer reviewed, edited, and published in the Special Communication section of the print and online October 2020 issue of JAMA, the Journal of the American Medical Association.
Most recent American Academy of Pediatrics medical guidelines for Children with Down syndrome.
Tennessee Department of Health website with current information about Down syndrome for both medical providers and families. Information, reources, and Links are available along with advocacy groups across the state of Tennessee.
Original Interview With William I. Cohen, M.D. on the Significance of Down Syndrome Health Care Guidelines.
An Open Letter To Every OB/GYN On The Planet: How To Deliver A Down Syndrome Diagnosis, The Right Way.
New growth charts (2015) for children with Down syndrome in the United States are available for download. These charts can help healthcare providers monitor growth among children with Down syndrome and assess how well a child with Down syndrome is growing when compared to peers with Down syndrome.
The clinic provides comprehensive care and professional services to children and teens with Down syndrome. The clinic staff assists patients in finding therapeutic services and educational/behavioral support and providing a multidisciplinary approach to treatment.
Down Syndrome Diagnosis Network has a goal to ensure families who receive a Down syndrome diagnosis receive current information and support.
Sometimes it can seem impossible to find funding for a piece of adaptive equipment you know will vastly enrich and enhance your child or client’s life. Includes Online funding resource guides and a list of funds and foundations set up to help with funding for disabilities.